Since Masoud’s passing Linda has suffered an intensification of her symptoms. 

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It is with our regret that at this time we must absolutely disclose to you the intimate terms of Linda’s current living conditions. As it is, Myositis causes horrible excruciating pain which robs the afflicted of all energy and renders their muscles to a non functioning and deteriorating state. The pain is only made worse by the fact that her only options are to lie in a hospital bed or have her body supported by an electric wheelchair. Once she is in bed, she can’t move her body or change positions in even the slightest bit without assistance. 

As an asthma sufferer Linda’s Myositis is making it even more difficult for her to breathe which also increases her risk of pneumonia which she has already battled twice. The last time she didn’t even know she had pneumonia until she was admitted to the hospital after seeking assistance for a UTI –also a symptom of the Myositis. The pneumonia had spread to both lungs and took months and months to fight off. She is also experiencing rapid loss of her hand and finger function, often barely able to hold her phone, cup, or fork –eventually she will need help to eat. Increasingly she suffers with dysphasia and finds it harder and harder to eat and swallow food. Often she can barely choke down a couple bites. She must face two horrific choices, both invasive surgeries, either one to widen the throat, or one to insert a feeding tube.